Organization Information Children's Inherited Brain Disorders Foundation (aka) National Fragile X Foundation 1615 Bonanza St., Suite 202 Walnut Creek,  CA  94596 Phone: 800 688-8765 Make A Donation Add to Donation Basket Donate Your Vehicle Email: NATLFX@FragileX.org Web Site: http://www.FragileX.org Help us raise awareness, advocate, and find effective treatments and a cure for people affected by Fragile X, a genetic disorder causing mental impairment.     When our son was five months old, my husband and I knew he wasn't developing normally. Watching him beside a cousin of about the same age, the harsh reality began to sink in.     Thus began a five-year odyssey for a diagnosis, but not before we had traveled thousands of miles searching for treatments and a cure.     I remember that October day clearly. The genetics counselor didn't want to give me the news over the phone, but I insisted. I felt as though I had been hit by a ton of bricks.     Fortunately, the National Fragile X Foundation held an International Conference that summer. Our attending was the major turning point in our ability to understand and help our son. The opportunity to talk one on one with the very researchers working on the disorder was enormously helpful. With each conference, we come home with information that has benefited us, our son's teachers, therapists, doctors, and most of all, our wonderful son .     All of this is possible because of the work of the National Fragile X Foundation. It brings together the knowledge and experience of parents, educators, therapists, geneticists and doctors as we search for the cure!